I am also ‘one of many’

I recently read a blog post that really resonated in me, it was one of those light bulb moments when you feel like the way you see something changes.

You can read the original post yourself here. It is by a fellow Fibro Warrior who goes by the name I Tripped Over A Stone, if you haven’t seen her blog before then please do check her out!

Fibromyalgia is mainly an invisible illness, so it’s difficult to really understand for the vast majority of people; friends, family, colleagues and even Doctors can’t see the fire that’s burning inside of you. Yes, they’ve seen the differences in me over time, the decline. The walking stick that turned into a crutch, then two crutches, and finally became a wheelchair; but, I don’t think a lot of people really understand why.

I am lucky enough to have a wonderfully supportive husband, who has been by my side every step of the way, two amazing girls who make my heart happy every single day, and a loving, caring & selfless Mom. They are my safety, my strength and my world. But, as grateful as I am to have them, I can’t help but feel that they don’t understand the pain and the frustration at being unable to do so many things.

There are many people who have fallen by the wayside as we navigate this new & difficult road, to some people you are easily forgotten when you can’t continue with the same lifestyle, or it becomes too difficult to make plans because of my illness and its many changes.

Yes, ours can be a lonely battle, but I am finally realising that I am not battling alone.

I live with daily chronic pain,

I am one of many.

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5 thoughts on “I am also ‘one of many’

  1. I am also “one of many” & I understand & can completely empathize with the lifestyle changes you’ve had to make because of daily pain.
    Unfortunately, people who don’t have first-hand experience often can’t cope or support us when we need it.
    I’ve been fortunate to have a team of supportive medical professionals & friends & family that I can count on throughout most of what’s been happening in my life.
    It’s good to know that there are others who can find the same kind of support to help them face the challenges of an invisible illness ?

    1. Thank you so much for your comment. It has been so lovely to read about other people’s experiences since I have started blogging, I’m so glad that I decided to.
      Sometimes I do feel upset about all of the people that we’ve lost along the way, but I remind myself that it is definitely quality over quantity, and I am blessed to have those that have stuck around. And I know I will have them no matter what. T.

      1. I started blogging to get out of my head & it continues to be refreshing & educational to connect with other people living with similar health issues & people who have varied creative interests & practices.
        I’m sorry you too have had to experience the loss of people from your life. I try to look at it as continued learning about people & life. And I’ve come to accept that it’s not about me at all. It’s about those people, their values & what they believe they can cope with or give to others in need.
        I hope you’re having a better day today than you did yesterday ?

      2. Thank you for your kind words and understanding ?
        I look forward to reading more about your life and experiences through your own blog and hope to continue offering you posts of interest on mine also! ?

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