I recently read a blog post that really resonated in me, it was one of those light bulb moments when you feel like the way you see something changes.
You can read the original post yourself here. It is by a fellow Fibro Warrior who goes by the name I Tripped Over A Stone, if you haven’t seen her blog before then please do check her out!
Fibromyalgia is mainly an invisible illness, so it’s difficult to really understand for the vast majority of people; friends, family, colleagues and even Doctors can’t see the fire that’s burning inside of you. Yes, they’ve seen the differences in me over time, the decline. The walking stick that turned into a crutch, then two crutches, and finally became a wheelchair; but, I don’t think a lot of people really understand why.
I am lucky enough to have a wonderfully supportive husband, who has been by my side every step of the way, two amazing girls who make my heart happy every single day, and a loving, caring & selfless Mom. They are my safety, my strength and my world. But, as grateful as I am to have them, I can’t help but feel that they don’t understand the pain and the frustration at being unable to do so many things.
There are many people who have fallen by the wayside as we navigate this new & difficult road, to some people you are easily forgotten when you can’t continue with the same lifestyle, or it becomes too difficult to make plans because of my illness and its many changes.
Yes, ours can be a lonely battle, but I am finally realising that I am not battling alone.
I live with daily chronic pain,
I am one of many.
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