Hello Crafty People!
As some of you may know, I am an hEDS fighter and after losing a lot of my health, abilities, confidence and self worth to this illness I discovered a whole world of crafty therapy and it honestly changed my life.
Not many people, including healthcare professionals, know much or anything at all about Ehlers Danlos or Hypermobility Spectrum. The thing is, like any spectrum there are vast differences between the extent to which people suffer; some people experience nothing more than feeling ‘double-jointed’ and having a fun party trick to show people! But others experience debilitating symptoms.
I am much closer to the latter.
I only heard about hEDS after a previous awareness campaign when my Dad heard a radio interview about it and sent me the podcast later to listen to because he thought it sounded like a good fit for the baffling spread of the unknown illness(es) that were hitting my body hard & fast.
He was right, and suddenly I discovered that all these seemingly unconnected health problems I was having weren’t simply coincidence; there was finally an explanation that made sense!
Discovering EDS & HSD was only the first hurdle to the diagnosis and treatment I needed; now I knew what was happening I had to convince my Drs. I am not going to lie, this was tough. IS tough. I haven’t finished those fights yet; but I am so much closer thanks to the work done by The Ehlers Danlos Society and EhlersDanlosUK.
Their websites are FULL of information about all of the different types of EDS & HSD, plus information about how to talk to your Dr about it and different treatment options you may benefit from.
That is why I am so invested in promoting awareness; the more I do to spread awareness the more likely it is that this information will end up in front of someone who desperately needs it.
Over the next 2 weeks I will be sharing lots of information about my experience of hEDS, fighting for recognition and the ways I manage my chronic illness.
Also, I am so very excited to say that with a LOT of help from my wonderful friends I will be hosting the 1st Annual Ehlers Danlos & Hypermobility Spectrum Awareness Hop from 24th May – we have some absolutely AMAZING prizes up for grabs so keep an eye out for announcements about that as we get closer to the Hop itself.
Hey Crafty People!
Please be aware:
As part of my Design Team and Guest Design work I do often receive free products to use, but I only ever recommend products that I genuinely love.
Also, I know how incredibly lucky I am to have these opportunities, but you don’t always NEED the newest products or the ‘full set’.
So please don’t feel that you need everything.
I like to show a variety of brands and products; this way there will be something for everybody to enjoy.
— SUPPLIES —
— My Basic Supplies That I Use On Every Project —
 MINI MISTI Shop at: Scrapbookcom | Alt | SBP | Trinity |
 MISTI – Original Shop at: Scrapbookcom | Alt | SBP |
 Nuvo Deluxe Adhesive Shop at: Scrapbookcom | SBP | Craftstash UK | Craftstash US |
 Neenah 80lb Shop at: Scrapbookcom | Alt | Craftstash UK |
 Neenah 110lb Shop at: Alt |
 Gemini Jr Shop at: Scrapbookcom | Craftstash UK |
 Tim Holtz Trimmer 8.5inch Shop at: Scrapbookcom | Craftstash UK | Trinity |
 Tim Holtz Scissors 7inch Shop at: Scrapbookcom | Craftstash UK | Craftstash US |
 Tim Holtz Mini Snips 5inch Shop at: Scrapbookcom | Craftstash UK | Craftstash US |
 Tidy Tray Shop at: Trinity |
 Pick Up Stick Shop at: Trinity |
 Reverse Action Tweezers Shop at: Scrapbookcom | SBP |
 We R Trim & Scoreboard Shop at: Scrapbookcom |
 Pressure Tool Shop at: Trinity |
 Mini Trimmer Shop at: Scrapbookcom | Craftstash UK | Craftstash US |
 9.5 inch Shears Shop at: Craftstash UK | Craftstash US |
 Bone Folder Shop at: Alt |
 Self Healing Mat Shop at: Alt | SBC |
*Affiliate links are used, where available; this means that I may get a small commission if you purchase using one of these links, at no extra cost at all to yourself. A huge thank you goes to anyone who does purchase using my links, it is so highly appreciated.
Hugs to you! Thank you for sharing! You are so strong and amazing!!!!!!
Awwww Tasha ur amazing.
I know it’s a battle but ur a fighter babes.
Sending u big hugs.xxxx
Thank you so much!! ?